As a part of our comprehensive care program for Epidermolysis Bullosa ( EB), we are attempting to initiate a registry of EB patients. Below is the link that can be accessed by you to submit a referral. This can be done on a desktop, laptop, iPad, Tablets and all mobile smartphones. It just takes about 3 minutes and upon submission, we will receive an email. Our EB team would then contact the patient directly and liaise with you for care. 

I would appreciate if you could store the link and kindly refer EB patients into the registry when you get a chance. 

The link is https://chgregistryapp.appspot.com/register/chg

Thank you for your encouragement. I am sure a lot of patients would benefit from this.